Update your Cookie Settings to use this feature.
Click 'Allow All' or just activate the 'Targeting Cookies'
By continuing you accept Avaaz's Privacy Policy which explains how your data can be used and how it is secured.
Got it
We use cookies to analyse how visitors use this website and to help us provide you the best possible experience. View our Cookie Policy .
OK
Stop the HHS-IOM contract and accept the CCC definition of M.E.

Stop the HHS-IOM contract and accept the CCC definition of M.E.

1 have signed. Let's get to
50 Supporters

Close

Complete your signature

,
By continuing you agree to receive Avaaz emails. Our Privacy Policy will protect your data and explains how it can be used. You can unsubscribe at any time. If you are under 13 years of age in the USA or under 16 in the rest of the world, please get consent from a parent or guardian before proceeding.
This petition has been created by Patricia C. and may not represent the views of the Avaaz community.
Patricia C.
started this petition to
Kathleen Sebelius, Secretary of Health and Human Services, United States of America
Millions of people worldwide suffer from Myalgic Encephalomyelitis (M.E.). For decades, sufferers have been left with no real biomedical research and no effective treatments. Now the HHS is attempting to prolong this time by contracting with the Institute of Medicine (IOM) to redefine the illness. This is unnecessary because experts in the illness, researchers and clinicians alike, have reached a consensus that the Canadian Consensus Criteria (CCC) should be used for both research and clinical purposes. They have sent an Open Letter to Secretary Sebelius expressing their support for the CCC. (See: http://www.mecfsforums.com/wiki/Open_Letter_to_Hon._Kathleen_Sebelius_9/23/2013 ). This HHS contract with IOM would simply be a waste of precious resources.
Posted (Updated )